What is that Word?

Lisa Lee | From a Mommy's Heart, Schizencephaly Awareness
13 Mar 2013

Schizencephaly – is a rare grey matter malformation of the brain. It belongs to the group of malformations of the central nervous system. http://en.m.wikipedia.org/wiki/Schizencephaly

You may have heard me talk about or even just seen the world on my Facebook. My passion and desire to spread Awareness has become a burning desire. I personally will not stop finding ways to share about this Rare disorder. There has to be resources to help families. The worlds needs to know that everyone that lives with Schizencephaly is a fighter. I am going to make it my point to find ways to help not just Gracelyn, but every person effected. Believe with me and pray God opens doors to create a national awareness day and much more.